To find out if there is a support group in the North East region for a specific condition contact Alix Groom or the National Support group. If you would like the details of your group on this website please contact Alix Groom.
We provide information, advice and support to families and carers of people with all forms of dementia. For further details visit our website www.alzheimers.org.uk/newcastle .
Do you have a child with Cleft Lip and/or Palate? Would you like to join our branch of CLAPA (Cleft Lip and Palate Assoc) Northern and Yorkshire Branch? We cater for everyone big or small even grandparents! For more information contact Debbi on 01609 774399 or debbi250@talktalk.net
8 Havelock Street, Darlington, County Durham. DL1 2JH
Tel: 01325 264806 or 07980209163
We provide support and information about Cardiomyopathy to patients and carers in the area. We meet on the second Wednesday of every month between 12:00pm-2:00pm. Venue, Parent Craft Room, Darlington Memorial Hospital, Hollyhurst Road, Darlington.
The Ashington Down's Syndrome Support Group meets once a month at the Ashington Family Centre, South View, Ashington. The group has been running for approximately a year now and is support by Down's Syndrome North East. Members find the support of other parents invaluable and their children have a chance to play and learn at the same time. Guest speakers and play workers often visit the group and this has proved extremely successful. New members would be very welcome!
For further information, please conyact Rachel Barron on 0191 525 0233.
Hi, we are a group of mums, dads, and grandparents living in the Darlington area. We have one meeting a month and get together to share our stresses and successes. It is a great way to share our experiences and to make friends. Up to now we have focussed on just a couple of big events through the year, but from next year we aim to have a full calendar of events and a leaflet in which to advertise them. Our meetings we aim to alternate between Friday mornings and Thursday evenings, to make us more accessible for busy families. We are supported by Down Syndrome North East, And Rachel Joynes Development Worker for DSNE regularly attends our meetings to lend her support. We would love to hear from any other Families living in the Darlington area who have a child with Down Syndrome.
We realise that not all new parents feel ready to meet large groups of people and we have members who would be willing to arrange one to one meetings. If you are a parent or a grandparent who would like to find out more about us, contact Maxine Manning at e-mail paul.manning1@ntlworld.com or Rachel Joynes on 01642 584197.
There are a number of other Down's Syndrome Support Groups in the region. For more information contact Down's Syndrome North East.
We provide emotional and financial support to families of Huntington's Disease, raise funds for the group and raise awareness of Huntington's Disease in the community. We also have guest speakers on subjects relevant to members needs. Meet 1st Saturday of the month 2-4pm, Ferguson's Lane Community Centre (the hut), Broadmead Way, Denton Burn. Buses 30, 31 and 38 from the Central Station stop outside the centre. The centre is wheelchair accessible all meetings are free, refreshments are provided. We have a dance every year, also a trip in August and Christmas lunch in December. Age ranges from 5 to 84 years.
There are other branches of the Huntington's Disease Association in the region. For more information contact the Huntington's Disease Association.
Parent Project UK Muscular Dystrophy (PPUK) is the only national Charity that exclusively funds research and promotes campaigns for better medical care for Duchenne and Becker Muscular Dystrophy. We encourage parents and supporters to come to our annual conference, be involved in fundraising and our campaigns. Every few months we meet with local parents to share new research and treatment information, and to talk about fundraising. It is a good opportunity to get together, support each other and discuss issues relating to DMD. For more information about local meetings contact Vici Richardson on 01670 821133 or email vici@ppuk.org. The national website is www.ppuk.org
PWSA (UK) Family Support Coordinator, Lizzie Medwell, arranges meetings and training events, as well as coordinating social get-togethers, outings and support networks for families who have a child affected by Prader Willi Syndrome. “Parenting for PWS” Days are held throughout Northern England, providing an opportunity for parents, carers and professionals to share ideas and information about this rare syndrome. For further information please contact Lizzie direct on (01423) 521114 or 07980 994 263, lmedwell@pwsa.co.uk. See also, www.pwsa.co.uk.
Coming soon “Parenting for PWS” Day for parents, carers and professionals Saturday 18th November 10.00am – 4.00pm at the Institute of Human Genetics Newcastle upon Tyne.